Patients & Community
Ionis community collaborations
At Ionis, the issues that are most critical to patients inform and inspire us in our work. By gaining a deeper understanding of what it means to live with disease, we gain a better appreciation of the disease burden, and can focus our resources where we believe we can make the most meaningful contribution. We seek industry and academic partners that share in our values and can help us to propel our research forward.
Corporate Alliances
Featured
8/2
Surf Away SMA with Ricochet
La Jolla Shores Beach – Tower 33 La Jolla, CA 92037
In collaboration with Cure SMA, Ionis will continue to support local families effected by SMA for a wonderful event at the beach including food, fun, and surfing.
With a limitless pursuit to support patients and families, Ionis will once again join forces with Cure SMA during SMA Awareness Month in August by hosting a FREE assisted surfing experience by Ricochet, the SURFice dog, and professional surfers on the beautiful beaches of La Jolla Shores in San Diego.
Community Commitment
Every year we provide support to various initiatives that have a positive effect in our community, from financial assistance to employee volunteerism and beyond. We seek sustainable partnerships and initiatives that support scientific innovation and unmet patient needs, including disease awareness, education and support.
2019
Sept 18-20th
Global Genes Rare Patient Advocacy Summit
Sheraton San Diego Hotel & Marina
As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge meaningful connections with other rare advocates and take home
actionable strategies and tools to accelerate change. This year, the Summit will take place in San Diego at the Sheraton San Diego Hotel & Marina.
5/23
ALS 4th Annual Fiesta
Sycuan Casino & Resort, El Cajon, CA
The Fiesta is a major, annual chapter event that honors incredible members in the ALS community while raising much-needed funds to support our missions in care services,
research, and advocacy. The evening will feature a cocktail reception, mystery box shopping, silent auction, a sit-down dinner, program with honorees, entertainment, and a live auction featuring one-of-a-kind experiences. This year’s ALS Fiesta Honorees include San Diegan and former NBA Head Coach Don Casey, honored for his 50 years of fierce advocacy for ALS since losing his mother to the disease in 1969.
5/18
ASF Walk
Ocean Air Park, San Diego, CA
Ionis is proud to sponsor the ASF Walk which raises money for research for treatments and a CURE for Angelman syndrome while lending a hand to families who need it.
Supporting patients relentlessly
At Ionis, we’re here to help patients stay connected and informed.
Once in a lifetime breakthroughs again and again
Meet Chuck. Active throughout his life, hATTR, a rare disease, started to rob him of the things he loved: riding his bicycle, dancing, racing motorcycles, and picking up his grandchildren. Just about to give up, news of a clinical trial renewed his hope.
