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Patients & Community

Ionis community collaborations

At Ionis, the issues that are most critical to patients inform and inspire us in our work. By gaining a deeper understanding of what it means to live with disease, we gain a better appreciation of the disease burden, and can focus our resources where we believe we can make the most meaningful contribution. We seek industry and academic partners that share in our values and can help us to propel our research forward.

Corporate Alliances

Community Commitment

Every year we provide support to various initiatives that have a positive effect in our community, from financial assistance to employee volunteerism and beyond. We seek sustainable partnerships and initiatives that support scientific innovation and unmet patient needs, including disease awareness, education and support.

2019
Sept 18-20th
Global Genes Rare Patient Advocacy Summit
Sheraton San Diego Hotel & Marina
As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge meaningful connections with other rare advocates and take home actionable strategies and tools to accelerate change. This year, the Summit will take place in San Diego at the Sheraton San Diego Hotel & Marina.
August
SMA Surf Event
In collaboration with Cure SMA, Ionis will continue to support local families effected by SMA for a wonderful event at the beach of food, fun, and surfing. Details to follow for this year’s 2019 Surf Away SMA.
5/18
ASF Walk
Ocean Air Park, San Diego, CA
Ionis is proud to sponsor the ASF Walk which raises money for research for treatments and a CURE for Angelman syndrome while lending a hand to families who need it.

Supporting patients relentlessly

At Ionis, we’re here to help patients stay connected and informed.

Once in a lifetime breakthroughs again and again

Meet Chuck. Active throughout his life, hATTR, a rare disease, started to rob him of the things he loved: riding his bicycle, dancing, racing motorcycles, and picking up his grandchildren. Just about to give up, news of a clinical trial renewed his hope.