Patients & Families

hATTR Change the Course

hATTR Change the Course is dedicated to supporting and empowering the hATTR amyloidosis community by providing resources and tools for patients, their families, caregivers and healthcare professionals. To learn more about hATTR amyloidosis, including signs and symptoms; stories of people living with the disease; and additional information and resources, visit or the hATTR Change the Course Twitter page or Facebook page.

hATTR Compass

Akcea and Ambry Genetics are partnering to offer no-cost, confidential genetic testing and genetic counseling to patients suspected of having or clinically diagnosed with hATTR amyloidosis through the hATTR Compass Program. To learn more, visit

To learn more about FCS, including signs and symptoms of the disease; read stories of people living with FCS; and access additional information and resources, visit


We are proud of our partnerships with the rare disease advocacy community that serves patients, families and caregivers affected by our disease areas of focus – including FCS, FPL, ATTR amyloidosis and Lp(a). Whether you or a loved one have been newly diagnosed, or you have been affected by one of these disorders your entire life, the organizations listed below can provide a wealth of additional educational and support resources.

hATTR amyloidosis

hATTR Change the Course
hATTR Compass
Amyloidosis Support Group 
Amyloidosis Foundation
Amyloidosis Support Network 
Amyloidosis Research Consortium

My Amyloidosis Pathfinder
Discover treatment centers and clinical trials that match your amyloidosis

Cardiometabolic disorders


FCS Foundation
LPLD Alliance
Association Francophone Hypertriglycéridémies Majeures Génétiques (AFHyMaGe)


National Pancreas Foundation (NPF)

Find a Pancreatitis Center

Lipid Disorders

National Lipid Association
Foundation of the National Lipid Association

Find a Lipidologist


Lipoprotein(a) Foundation

Rare Disease

United States
EveryLife Foundation for Rare Diseases
National Organization for Rare Disorders (NORD)
Global Genes

Rare Diseases Europe (EURORDIS)
Genetic Disorders UK

Canadian Organization for Rare Disorders (CORD)