Patients & Families
hATTR Change the Course
hATTR Change the Course is dedicated to supporting and empowering the hATTR amyloidosis community by providing resources and tools for patients, their families, caregivers and healthcare professionals. To learn more about hATTR amyloidosis, including signs and symptoms; stories of people living with the disease; and additional information and resources, visit hattrchangethecourse.com or the hATTR Change the Course Twitter page or Facebook page.
Akcea and Ambry Genetics are partnering to offer no-cost, confidential genetic testing and genetic counseling to patients suspected of having or clinically diagnosed with hATTR amyloidosis through the hATTR Compass Program. To learn more, visit hattrcompass.com.
To learn more about FCS, including signs and symptoms of the disease; read stories of people living with FCS; and access additional information and resources, visit FCSFocus.com.
We are proud of our partnerships with the rare disease advocacy community that serves patients, families and caregivers affected by our disease areas of focus – including FCS, FPL, ATTR amyloidosis and Lp(a). Whether you or a loved one have been newly diagnosed, or you have been affected by one of these disorders your entire life, the organizations listed below can provide a wealth of additional educational and support resources.
My Amyloidosis Pathfinder
Discover treatment centers and clinical trials that match your amyloidosis
Find a Pancreatitis Center
Find a Lipidologist