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Resources

Tools for Your Practice

Beyond the development of potential new treatments, we are committed to supporting health care professionals with informational resources.

For more information about FCS, please visit FCSFocus.com

Please use these links to view expert presentations and patient interviews:

What You Need to Know About Familial Chylomicronemia Syndrome: Pathophysiology, Diagnosis, Management, and the Patient Perspective

Familial Chylomicronemia Syndrome: Cause, Effect, and Solutions to Improve Patients’ Quality of Life

hATTR Guide

hATTR Guide provides education and resources to empower healthcare professionals to diagnose, manage and better support their patients living with hATTR amyloidosis. To learn more about supporting hATTR amyloidosis patients, including identifying the red-flag symptoms; and diagnosing, managing, and treating the disease, visit hattrguide.com or the hATTR Guide Twitter page.

hATTR Compass

Akcea and Ambry Genetics are partnering to offer no-cost confidential genetic testing and genetic counseling to patients suspected of having or clinically diagnosed with hATTR amyloidosis through the hATTR Compass Program. To learn more, visit hattrcompass.com.

 

Additional resources, including a list of advocacy organizations, are available here.