In The Community

Spinal Muscular AtrophyLindsey
Familial Chylomicronemia Syndrome
Ionis Pharmaceuticals is committed to the enrichment and healthy future of the communities where we live and work. Through volunteering and charitable contributions, Ionis supports events that are aligned with our rare disease pipeline. We encourage employees to donate their time and talents to deepen our relationship with patients and our surrounding communities.

2018 Community Involvement


June 14 – 17

Cure SMA Annual Conference – Orlando, FL

This annual conference is the largest SMA conference in the world.  Cure SMA brings together researchers, healthcare professionals and families to network, learn, and collaborate. Learn more


August 3

Surfing w/ Ricochet the Surf Dog! – La Jolla Shores Beach, San Diego, CA

An annual Ionis event with Cure SMA.  More details soon. Visit the Surf with Ricochet website here | Watch our 2016 Surf with Ricochet video


September 14 – 15

Myotonic Dystrophy Foundation Annual Conference – Nashville, TN

Every year, the MDF Conference provides a friendly, welcoming place for people with DM to learn from one another and hear from an incredibly diverse array of scientists, researchers, advocates and community members with one thing in common: a belief that every person with DM deserves a high quality of life, and that learning from each other strengthens us all.  Learn more

September 30

Huntington’s Disease Society of America Team Hope Walk – Coronado, CA

The Team Hope Walk program is HDSA’s signature grassroots fundraising campaign designed to provide hope and support for those affected by HD. This is a short walk around Tidelands Park and the event includes food, beverages, music & dancing. Learn more


October 3 – 4

Global Genes Annual Summit – Irvine, CA

For patients, caregivers, and advocates to become better equipped with actionable next steps whether you have been recently diagnosed, are building a disease community, thinking about funding early research, actively engaged in developing a treatment, or have been advocating in rare disease for decades. Learn more

October 21

ALSA Walk to Defeat ALS – Mission Bay Park, San Diego, CA

The Walk to Defeat ALS is The ALS Association’s biggest annual event, which raises funds that allow our local chapters to sustain care services and support research for much of the next year. Learn more


Past Community Involvement