In The Community

Spinal Muscular AtrophyLindsey
Familial Chylomicronemia Syndrome
Ionis Pharmaceuticals is committed to the enrichment and healthy future of the communities where we live and work. Through volunteering and charitable contributions, Ionis supports events that are aligned with our rare disease pipeline. We encourage employees to donate their time and talents to deepen our relationship with patients and our surrounding communities.

2017 Community Involvement


February 28

Rare Disease Day

Rare Disease Day is an international campaign designed to focus attention on the impact of rare diseases.  2017 marks the tenth international Rare Disease Day.  On and around this day hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities. Learn more


March 19-22

MDA Scientific Conference – Arlington, VA

The 2017 MDA Scientific Conference will bring together influential professionals in the academic, government, industrial and clinical arenas who work in various ways to help drive scientific and therapeutic advancements and discoveries. Learn more

March 25

HD-CARE Symposium – UC Irvine, Los Angeles, CA

Join the HD Community as well as researchers, medical students and the business community for information about breakthrough HD research and helpful information about clinical trial participation. Learn more


April 22

Huntington’s Disease Society of America Team Hope Walk – Cities Across USA

The Team Hope Walk program is HDSA’s signature grassroots fundraising campaign designed to provide hope and support for those affected by HD. Learn more


May 20

Angelman Syndrome Foundation Walk – Cities Across USA

43 cities across North America participate to raise awareness and to bring the Angelman Syndrome Community together for a fun-filled day. Learn more

May 21

Cystic Fibrosis Great Strides Walk – Cities Across USA

Great Strides is the Cystic Fibrosis Foundation’s largest national fundraising event.  Each year, more than 125,000 people participate in hundreds of walks across the country to support the Foundation’s mission to cure cystic fibrosis. Learn more

May 25

ALSA San Diego Fiesta Celebration, San Diego, CA

An evening of fun and festivities as the ALS Association San Diego Chapter raises much needed funds to continue their mission of providing compassionate care and support for local families fighting ALS.  Learn more


June 29-July 2

Cure SMA Annual Conference – Orlando, FL

This annual conference is the largest SMA conference in the world.  Cure SMA brings together researchers, healthcare professionals and families to network, learn, and collaborate. Learn more



Surfing w/ Ricochet the Surf Dog! – La Jolla Shores Beach, San Diego, CA

An annual Ionis event with Cure SMA.  More details soon. Visit the Surf with Ricochet website here | Watch our 2016 Surf with Ricochet video


September 8-9

Myotonic Dystrophy Foundation Annual Conference – San Francisco, CA

Every year, the MDF Conference provides a friendly, welcoming place for people with DM to learn from one another and hear from an incredibly diverse array of scientists, researchers, advocates and community members with one thing in common: a belief that every person with DM deserves a high quality of life, and that learning from each other strengthens us all.  Learn more

September 14-15

Global Genes Annual Summit – Irvine, CA

For patients, caregivers, and advocates to become better equipped with actionable next steps whether you have been recently diagnosed, are building a disease community, thinking about funding early research, actively engaged in developing a treatment, or have been advocating in rare disease for decades.  Learn more

September 16

California Coastal Cleanup Day – San Diego, CA

The Annual SD Coastal Cleanup Day is part of a statewide and international cleanup effort to enhance and conserve our coast across the globe. Ionis employees will volunteer at beaches & parks throughout San Diego County. Learn more


October 15

ALSA Walk to Defeat ALS – Mission Bay Park, San Diego, CA

The Walk to Defeat ALS is The ALS Association’s biggest annual event, which raises funds that allow our local chapters to sustain care services and support research for much of the next year. Learn more

Past Community Involvement